1 Current Problems
2 PKB Solution
3 Benefits
4 Key PKB Features
- 4.1 Questionnaires
- 4.2 Messaging
- 4.3 Library
- 4.4 Care Plans
- 4.5 Data
- 4.6 Comms

Patients Know Best (PKB), a digital personal health record, is used by neurology teams in many different ways with their patients to improve pathways and give them access to their data. When considering using PKB in your team, it's important to have clear, achievable goals to change the current patient and clinical pathways.

Teams and patients with Parkinson’s can use PKB to securely share medical records, track symptoms, and manage care plans, enabling better coordination, informed decision-making, and personalized treatment.

Current Problems

Teams experience a high level of face-to-face appointments
Telephone conversations are lengthy
Teams want to provide patients with a digital care plan
Teams want to give patients online resources
Teams want patients to have access to medication changes and test results
Reduce unnecessary appointments
The team wants to deliver a digital PIFU pathway

PKB Solution

Symptom tracking allows patients to log and track symptoms, helping them notice changes and act accordingly.
Personalised care plans with action plans, goals and how to get support.
Questionnaires, automated and customised gathering of critical patient data
Test results enable patients to manage their health proactively.
With asynchronised messaging, patients can directly contact their care team for advice, reducing the need for phone calls and unnecessary clinic visits.
Send patients digital appointments and appointment letters

Benefits

Reduction in unnecessary appointments
Improved self-management: Patients are empowered with tools for remote monitoring.
Reduced administrative burden, automated workflows and digital tools minimise manual workflows.
Timely escalation of care, patients can initiate follow-ups when needed, ensuring timely interventions.
Reduce follow-up care costs, allowing patients to manage follow-up through PKB instead of traditional methods.
Improve patient engagement and satisfaction.

Key PKB Features

Parkinson’s teams can use PKB to enhance patient care, streamline communication, and improve efficiency in managing long-term conditions.

Questionnaires

Patients can initiate a questionnaire by clicking Start Questionnaire on their homepage or directly within the NHS App. Once completed, the questionnaire can be sent to a professional or team.

Teams using the questionnaire tool can ensure the outcome of clinical reviews is recorded and the patient has a copy. Teams can also identify patients suitable for virtual appointments or pre-operative assessment questionnaires.

PKB's advanced questionnaire functionality

The features include:

Scoring and calculations
Branching, allowing patients to complete the parts of the questionnaire that are relevant to them
Coded field questionnaires can be mapped to clinical codes
Patients can save drafts
Send questionnaires to patients who aren’t registered or already in your team

Questionnaire templates examples

Messaging

Patients have access to message their healthcare team (saving time on the phone)
The Admin team can triage messages. Either resolving or passing onto another speciality team.
Team-based messaging allows teams to automatically receive secure messages and questionnaires as a group rather than as individuals.

Library

A wealth of resources on all neurological conditions
National and local information and guidance
Videos
Hospital and organisation information
Medication advice

Care Plans

PKB have a care plan toolkit with examples of care plan templates used by teams. There is a process for teams to amend care plans or create new ones here. A selection of care plans are below.

Symptoms tracking in monitoring care plan templates
Personalised care plan templates
Disease care plan with individualised templates with escalation plans
A place to track and record symptoms related to the speciality
Consent care plans
Treatment care plans

Data

Sharing blood results
Appointments
Appointment letters
Clinical letters

Comms

Provide clear information for patients on how to use PKB and what digital support the teams provide.
Comms to staff on the new clinical and patient digital pathways

Parkinson's Teams