Epilepsy Care Plans

Epilepsy Care Plans

Epilepsy Welcome Care Plan

Key Objectives

Provide patients and parents with information about their team that they can access in their own homes before or after an appointment.

Outcome Measures

Equip patients and their families with personalised information about the team and how they will support them and their child, along with personalised care plans to track and monitor symptoms and seizures.

Current Baselines

Patients don't currently have a space to keep their epilepsy information in or the ability to share it with the people they need to.

image-20250825-021113.png

<div class="form-inline">

<style media="screen">

a {word-wrap: break-word;}

.form-group {width: 100%; !important}

.cp_label {font-size: 18px;font-weight: 900;}

.cp_whiteBox {background-color:#ffffff; padding:15px; margin-bottom:10px; margin-top:10px; border-radius: 10px; border: 3px solid #014151;}

</style>

<div class="cp_whiteBox">

<h2>Welcome and getting started with Epilepsy!</h2>

<p>This platform is designed to support Children and Young People and their families with epilepsy to track health, share information with those you trust and keep your health information in one place. </p>

</div>

<div class="cp_whiteBox">

<h2>To get you started you can find</h2>

<ul id="top">

<li style="list-style:inherit; margin-left: 15px;"><a href="https://s3.eu-central-1.amazonaws.com/pkb-uploads-nocrypto-eu-prod/456a253270d24989b2310fe2532c0f1c_seizure-first-aid-young-epilepsy.pdf">First aid information</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://s3.eu-central-1.amazonaws.com/pkb-uploads-nocrypto-eu-prod/559744c1ae33485aa530ee3121257980_SUDEP+Action+generic+risk+and+participation+leaflet.pdf">Participation and risk information including water safety</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://s3.eu-central-1.amazonaws.com/pkb-uploads-nocrypto-eu-prod/435c7f016f1d45a889428ffc485b1db6_Contact+Details+for+children+and+families+with+seizure+Dunkley+for+PKB.pdf">Contact details for your Epilepsy Team </a></li>

</ul>

<p><b>You can use this platform to</b></p>

<ul id="top">

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/test/myMeasurements.action?contextUserId=">Record your seizures in a diary</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/test/mySymptoms.action?contextUserId=">Record other specific symptoms in a diary</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/diary/viewDiary.action?contextUserId=">Keep a general health journal</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/auth/composeMessageForm.action?">Send your Epilepsy Team a message, video or other attachment</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/auth/getInbox.action?">Send your Epilepsy Team a seizure description</a> - by selecting <b>'Start consultation'</b> on the Events and messages

section.</li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/library/manageLibrary.action?contextUserId=">Look at or add to your health library of epilepsy information</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/auth/listPlans.action">Look at or edit your health plans</a></li>

<li style="list-style:inherit; margin-left: 15px;"><a href="https://sandbox.patientsknowbest.com/patient/myDependents.action">Share this record with another trusted person</a></li>

</ul>

</div>

<div class="cp_whiteBox">

<h2>Meet your team</h2>

<div class="row">

<div class="col-sm-5 pull-left" style="border-radius: 10px; border: 3px solid #014151; margin: 15px;">

<h3>Colin Dunkley - Consultant Paediatrician</h3>

<img src="https://cdn.patientsknowbest.com/careplanimages/Sherwood_Forest_Hospital/Colin.Dunkley.jpeg" alt="" style=" max-width: 720px; width: 100%; height: auto; margin-top: 15px; margin-bottom: 15px;"></img>

</div>

<div class="col-sm-5 pull-right" style="border-radius: 10px; border: 3px solid #014151; margin: 15px;">

<h3>Kirsten Johnson - Roald Dahl Sapphire Children's Epilepsy Specialist Nurse</h3>

<img src="https://cdn.patientsknowbest.com/careplanimages/Sherwood_Forest_Hospital/Kirsten.Johnson.jpeg" alt="" style=" max-width: 720px; width: 100%; height: auto; margin-top: 15px; margin-bottom: 15px;"></img>

</div>

</div>

<div class="row">

<div class="col-sm-5 pull-left" style="border-radius: 10px; border: 3px solid #014151; margin: 15px;">

<h3>Paula Thurman - Patient Pathway Coordinator</h3>

</div>

</div>

</div>

</div>

Epilepsy Seizure Diary Care Plan

screencapture-sandbox-patientsknowbest-auth-managePlans-action-2025-08-25-14_20_01-edit.png

All About Me Care Plan

screencapture-sandbox-patientsknowbest-auth-managePlans-action-2025-08-25-14_24_17-edit (1).png

 

Patients Know Best Wiki Hub | Deploy | Developer | Trust Centre | Manual | Research | Education | Release Notes

© Patients Know Best, Ltd. Registered in England and Wales Number: 6517382. VAT Number: GB 944 9739 67.